HealthE-RND Team – Healthe-rnd

TEAM

We want to offer a user friendly eHealth solution. The platform is therefore developed with a team of patient representatives, researchers and health care providers working with Huntington’s disease (HD).

PATIENT REPRESENTATIVES

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A panel consisting of patients and family members from Huntington's disease families is taking part in the project. The group is coordinated by the European Huntington Association and provides continuous input in the development of the eHealth platform.

COORDINATORS

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The project is being coordinated by a multinational team of representatives from Huntington centres and research institutions in Germany, the Czech Republic, the Netherlands, the United Kingdom, Ireland and Italy.

FAMILY & PATIENT
EXPERT PANEL

The Family and Patient Expert Panel (FPEP) is coordinated by the European Huntington Association. The panel consists of representatives from Norway, Italy, Germany, Ireland, England and the Netherlands. Get their thoughts on the project in the videos below!

Astri Arnesen
Representative | Norway
European Huntington Association

Michaela Winkelmann
Representative | Germany
Deutsche Huntington-Hilfe

Barbara D’Alessio
Representative | Italy
Lega Italiana Ricerca Huntington

Ann Lennon Bird
Representative | Ireland
Huntington’s Disease Association of Ireland

Barry McIntosh
Representative | England
Huntington’s Disease Association of England & Wales

COORDINATORS

HealthE-RND is being coordinated by a multinational team of representatives from Huntington centres and research institutions in Germany, the Czech Republic, the Netherlands, the United Kingdom, Ireland and Italy.