WHAT IS OUR GOAL?
Click here
Our aim is to develop an eHealth platform to improve quality of life in individuals affected by rare diseases. By offering online help we might be able to achieve our aspiration: that everyone should have access to guidance and care.
Learn more
WHAT WE DO
Click here
HealthE-RND is a pilot project. Over 3 years we aim at developing an eHealth platform and a quality of life questionnaire. To study whether the platform is useful, we are focusing on Huntington's Disease (HD). Medical centres and people affected by HD in six European countries are therefore participating in the project.
Learn more
Start video
HealthE-RND IS CARRIED OUT IN 3 STEPS
1. HD-Needs
In HD-Needs we are working on developing a questionnaire to measure overall quality of life in people affected by Huntington's disease (HD) and their companions.
2. HD-eHelp
In HD-eHelp we are developing a digital platform. Here, people and families affected by Huntington's disease (HD) will get access to guidance and help online.
3. HD-Proof
In HD-Proof we will measure whether online help is beneficial for people. At this stage, we will evaluate the impact by using our quality of life questionnaire.
HealthE-RND is funded by the EU Joint Programme – Neurodegenerative Disease Research (JPNDR). It is a European collaboration between partners from Czech Republic, Germany, Ireland, Italy, the Netherlands and the United Kingdom.
Additional funders:
